Jennie Wilklow and her husband were thrilled to welcome their baby girl via C-Section in 2017. But when sweet little Anna was pulled out, doctors let the couple know that Anna had a birth defect. At first, Jennie wasn't overly concerned- she was just excited to finally get to meet her daughter! But she knew something must be terribly wrong when her husband saw Anna... He said to her, "It's bad... It's just bad, but I looked into her eyes and she has the most beautiful soul."
Within minutes of her birth, baby Anna's skin painfully cracked, revealing a rare skin condition called Harlequin Ichthyosis. Jennie says, "Harlequin is basically a mutation in a gene that doesn't let your skin form its last layers correctly."
In the past, Harlequin Ichthyosis was seen as a death sentence and newborns rarely lived past their first few days. But with medical advances and special precautions to care for her, Anna is 15-months-old and thriving! She spends 4 hours a day in the bathtub to help her skin, and easily downs about 2,100 calories a day to help support her body producing skin at an accelerated rate.